Heal me- visit with the Endo specialist

I went to see my endometriosis specialist yesterday, Dr. Kanayama. It’s ridiculous what my mind does to me before an exam. I guess I have flashbacks to just about every doctors visit I’ve had in the last three years. I won’t go into all that again, but I will summarize the last year that has changed my life.
After our failed FET, the RE told me to have my tubes removed, and then maybe I’ll stay pregnant and the Endometriosis would go away. He recommended a gynecology oncologist and said he heard about a Japanese doctor in NYC that was good too.
I first met Dr. K April 9th, 2012, when he told me his goal was to get my quality of life back. He told me I’d need two surgeries to fix what the other three surgeries caused.
The first surgery Dr. K did was on May 24, 2012, it went well, I felt great afterwards, he removed my left Fallopian tube. I had instant relief when I woke up. But, I had to have a urinary catheter. My bladder was on the wrong side, so he accidentally nicked it. One stitch. The catheter was out in a week. Sadly, the pain was returning by the second surgery, September 27, 2012. The worst part was the anesthesiologist. But I did have cysts again and this time I was diagnosed with adenomyosis. But I really felt great once the anesthesia was out of my system.
This year, after I recovered from the second laparoscopy from last year. We were ready to try IVF again. So I went to see Dr. K for a check up and the Ok. He did an ultrasound. I watched as always. Everything was ok January 14th. We got the OK.
I immediately made an appointment with the RE for January 30th.
Naturally, I had to get another ultrasound. I will never forget the techs face. We were talking about where I had been in the last year and I told him about my surgeries and how I was just at the specialists office and had an ultrasound. His face sort of looked puzzled while he looked at the screen. He turned the monitor towards me to see and asked me if I knew about this… What? Hydrosalpinx. Sonofabitch! That poor RE had to tell me I needed another surgery before IVF.
I called Dr. K as soon as I got in the car. He was as shocked as I was. He needed to see it!
February 4th, I went back to the city to see Dr. K, for another ultrasound, confirming my right Fallopian tube looked huge. So he called the RE and they decided I needed an HSG done to make sure it was my tube and not free floating fluid (which I have).
Yes, I had another painful HSG (hysterosalpingogram) and it confirmed, I needed surgery. March 14, 2013.
The follow up appointment was normal post op.
Yesterday’s appointment was supposed to be after six months but I was anxious to see if my endometriomas (chocolate cysts) grew back. I had every intention to go there and discuss having a hysterectomy.
There I was in the exam room, over 15 pounds lighter than I was in March, undressing from the waist down and waiting for my ultrasound. Praying all was ok.
I have to say, he is the gentlest doctor I’ve ever had. And I’ve had quite a few ultrasounds these past few years! We looked together at my insides. My uterus was first, all things considered, it looked ok. Then came the ovaries. My right one had some fluid around it but it looked normal and then we moved to the left and even that one, looked normal, small but normal. Then he focused on the fluid. This was awesome. He pulled it up in 3-D. 360 degree view. The conclusion is that I have scar tissue causing a pocket of fluid build up. It’s not that big. So I got dressed and met him in his office. He said he was so happy to finally have a good visit, that he didn’t have to give me bad news for once. I told him about the acupuncture and how I was a little better but because of the adenomyosis, I was wondering about having a hysterectomy. He told me to wait. I listened gladly. I don’t really want another surgery this year. I’ll keep finding the money to pay for acupuncture since its helping me greatly, just as Dr. K has.
While talking to the office manager there, she said, “so, your ovaries are behaving, are we thinking anything, like maybe trying again?” I told her we were done. Then I also said I thought I’d start the path of healing instead of a quest that my uterus and body seems to be against. I believe I’m on the mend.


About our last embryo

I have Endometriosis, Adenomyosis and Hashimoto's Thyroiditis. I've had Lyme, Bell's Palsy and the Shingles before I was 25. I've done IVF twice, with and without immunosuppression and FET. I am married to my best friend and I am Infertile.
This entry was posted in adenomyosis, Endometriosis, endometriosis awareness, endometriosis diet, excision surgery for endometriosis, hope and love, hydrosalpinx, infertility, invisible illness, IVF In Vitro Fertilization, laparoscopy and tagged , , , , , , , . Bookmark the permalink.

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