Trying to make a decision

It’s hard to be a spoonie.
I never considered that I was a spoonie until I read The Spoon Theory. Now I know I am! Between the endometriosis, Lyme disease aftermath, adenomyosis, Hashimoto’s, fibromyalgia and getting older, I’m not sure what pains are from what or where but I feel them and I’m now taking charge of my health!
Today, is another rough day. I woke up during the night from various pangs and once for no reason it seemed. Then this morning it felt like my bladder and my insides were mad at me. Not to mention the new leg pain on the right, this time down the inside of my leg. That’s subsided this afternoon. But my legs felt heavy and I had that same feeling like when I get my period. Belly and legs included. But it wasn’t as painful, just a dull ache and very uncomfortable. Ok, it was painful, but not as bad as last week. It’s only cd10, not even ovulation time yet, why am I having these pains at the wrong time? Is it from intercourse? I hope not!
I am debating on going into the city to talk to Dr. Kanayama, my endo specialist, about this and removing one or both ovaries and my evil, horrible, downright mean uterus. I know he doesn’t want to because its not a cure for endo and I’m young (that was a nice compliment), but there’s no need to protect my parts now, they’ve been proven useless, unless you like pain! I realize that it would cost me money to go into the city, not just for the specialist, but for parking and tolls! So, I called and spoke to the office manager and I will call him next Wednesday to discuss! Unless my pain worsens, then I’ll have to grin and bear it, well, not grinning.
If anyone has experience with a hysterectomy with or without leaving an ovary in and had excision surgery done at the same time, please, let me know your experiences. You can email me at if you don’t want others reading your comments. I appreciate all the feedback I can get. I can research online until the cows come home, but first hand experience is always better. Thank you.
I think my body is tired from the weekend (see my last post) and from a long day at work yesterday, followed by a three hour dinner to celebrate a family friends birthday. I should’ve had a glass of wine or ten! But it was a nice evening. It just sucks having to pay for a good time with friends and family.
I’m trying new supplements (magnesium and upping vitamin D) but sometimes they just give me tummy aches.
Happily looking forward to acupuncture tomorrow. I’ll have to ask if there’s something different she’s been doing or a point that she’s changed. Because two cycles ago, I didn’t have as much uterine pain.
I sometimes think I should get some medicinal marijuana and see of that would help ease my pain. Or at least help me sleep.
Maybe I’m just in a rut. I need to meditate more and do more reiki. I’m eating better, lost over 20 pounds and still have pains.
The life of another spoonie.


About our last embryo

I have Endometriosis, Adenomyosis and Hashimoto's Thyroiditis. I've had Lyme, Bell's Palsy and the Shingles before I was 25. I've done IVF twice, with and without immunosuppression and FET. I am married to my best friend and I am Infertile.
This entry was posted in adenomyosis, Endometriosis, endometriosis awareness, endometriosis diet, excision surgery for endometriosis, Hashimotos thyroiditis, hope and love, infertility, invisible illness, laparoscopy, laparotomy/c-section scar, meditation, positive thinking, reiki and tagged , , , , , , , , , . Bookmark the permalink.

5 Responses to Trying to make a decision

  1. Stina says:

    Melanie, I just sent you a private email. 🙂

  2. Nickie says:

    My doc believes leaving an ovary or both is best for long term health. That is if the ovaries are ok to stay.

  3. Nickie says:

    True, but they also know that endo feeds itself estrogen. It’s a tough decision.

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