I have decided that it’s time to start a more inclusive support group for women with invisible illnesses. I know a bunch of women who suffer silently with autoimmune diseases, endometriosis, infertility and other life altering issues. I love that we have support groups. I think they’re great. However, most of them are so specific to a disease, even though I am pretty sure they discuss the same things we need too, they exclude us.
Here are my thoughts, as a woman with all of these issues:
We need to be loved.
We need to be able to vent and not be judged.
We need the support of others. Other women fighting similar battles, we can share what may work and what didn’t work for us.
We may not look sick, most of us don’t or we hide it very well, but we are.
I keep thinking about the awesomeness of the EndoMarch and how good it felt to tell people about what we are doing for endometriosis. I really want to help other women. This is what I came up with. All of these issues are very important to me. There are too many women who suffer in silence. I’m here for you!
Hugs are beneficial! Smiling is good therapy. Crying can help release tension.
What should my group be called?
-
Recent Posts
Recent Comments
Archives
- July 2020
- November 2017
- December 2016
- September 2016
- March 2016
- February 2016
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- January 2015
- December 2014
- November 2014
- October 2014
- September 2014
- August 2014
- July 2014
- June 2014
- May 2014
- April 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
Categories
- acupuncture
- adenomyosis
- allergist
- anxiety
- caremark
- Crystals
- devastated
- dogs
- egg retrieval
- Embryo transfer
- embryos
- endobloggers unite
- Endometriosis
- endometriosis awareness
- endometriosis diet
- excision surgery for endometriosis
- food allergy
- Hashimotos thyroiditis
- hope and love
- hydrosalpinx
- hysterectomy
- IBS
- infertility
- infertility in the workplace
- integrative medicine
- invisible illness
- IVF In Vitro Fertilization
- laparoscopy
- laparotomy/c-section scar
- mammogram
- medicarion allergy
- meditation
- million women march for endo
- positive thinking
- reiki
- reproductive immunology
- Tibetan bowls
- Uncategorized
Meta
I don’t have good ideas for a name for a group, but I love the idea of the group. My early years were always spent dealing with this. Now in my later years, it’s a lot of rejection due to inability to have kids. I can completely understand the need for support.
Thank you. You’re welcome to join. I’ll put up the Facebook group name when I decide and a link.
I think this is great! I have a group I named HOPE. It stands for Holding On to the Promises and Expectations. Good luck girl!
Thank you
This is a great idea! I have no name suggestions. Sorry I’m in a very non creative mood.