Hi! I’m 40 years old and I’m married to my best friend. I have stage IV endometriosis, an invisible illness that affects so many girls and women all over the world. There is no cure. Many gynecologists tell women to get pregnant, go on medication that mimics menopause or the birth control pill or have a hysterectomy. The gold standard to help endo sufferers is excision surgery. There are only a handful of skilled excision specialists around the world. I’m hoping one day to get to the CCECEC in Georgia for a complete excision surgery.

I also have Hashimoto’s thyroiditis, an autoimmune disease, making me mostly hypothyroid, but sometimes I go hyperthyroid. Fun stuff! I have adenomyosis as well.

We’ve had a very trying time these last few years. We have no children, but we have 2 dogs. We had one embryo left from our IVF in 2011, our last embryo. That is where the title comes from.

This is our story. Thank you for reading.


9 Responses to About

  1. Steph Mignon says:

    Hello! I too have stage IV and 2 dogs! Happy to find another “endosister” here in the blogosphere. Together we can spread awareness about this horrendous disease! Looking forward to your posts and sending you lots of positive energy!

  2. stinam says:

    Hello! I wanted to let you know that I’ve nominated you for the Versatile Blogger Award. Here are the details: http://stinasjourney.wordpress.com/2013/03/23/who-doesnt-like-the-occasional-pat-on-the-back/

  3. Pingback: Feeling… and Sharing the Love! | Does Your Journey Seem Long?

  4. robertaskey says:

    Hi, I stumbled upon your blog while browsing auto-immune disorders.

    My wife of nearly 22 years died in 2009 from an auto-immune condition called Multiple Sclerosis after suffering from it for almost a quarter of a century.

    There is still no cure for the disease, and not really much in the way of effective treatment but the research through the MS Society continues, and it is important that a cure and effective treatments for the symptoms are found soon.

    I am walking — yes, walking almost 500 miles! — through the entire west coast of Scotland to raise funds for the MS Society in the UK. Please take the time to share my story.

    Oh, and thanks for sharing *your* story.

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