March 2016 Endometriosis Awareness Month 

Here we go again! I really want to say that I’m going to write a blog post every day, but that’s not realistic for me. I’ve kind of been missing in action on this blog. It’s not really intentional.  I got my dream job really with really long hours and a bit of a commute.  I get to work with animals and make a difference. Love. 

Back to endometriosis awareness. It’s been a few years since the Drs. Nezhat began the Worldwide EndoMarch and sadly nothing has really changed to the average person. However, I have seen more women posting about endometriosis on Facebook and Twitter. I’ve seen no changes for us when going to a regular gynecologist.  They still tell you to get pregnant (well, not me anymore since I’m older and have no tubes), get a Lupron injection to induce false menopause (don’t get me started on the YouTube video of Lena Dunham and her friend shooting her with it-hoping she sees us and learns the truth) and the hysterectomy. What they don’t understand is that none of that takes care of the horrific adhesions all of us have suffered from. I’ve known women who have done all of the above and still never found relief until they have excision surgery with a specialist, who is STILL not covered by insurance!!!! Thousands and thousands of dollars and many of us need more than one surgery to repair all the years of bad advice and surgeries!  

Friday, March 18th, Dr. Farr Nezhat and a group of EndoMarchers will be working hard to get yellow awareness on the Today show on NBC and I’m going (period permitting) on Saturday!  

 
Join us to promote awareness of this debilitating disease. Educate the public, yourself, doctors and surgeons, so your mom, sister, cousin, aunt, daughter and friends don’t have to go through years of being told they’re crazy before being diagnosed. 

Advertisements
Posted in Uncategorized | Leave a comment

Is it back? Or am I old?

I’m so grateful for everything in my life right now. I hate to complain, but here it comes: my hip and leg hurts sooooo much. The pain kept me awake and nothing was helping. I don’t know if this is because I slipped outside yesterday and fell on some ice? That was my knee but maybe. Or!!! It’s the damn endometriosis or adenomyosis! I’m a little crampy cause you know what happened again this month, because you know who decided I should keep this stupid uterus. I want it gone!!! I could barely walk this morning. Thank god I’m off of work today. My job is so physical, there’s no way I’d be able to do it today! Grateful for the day off. Grateful for my friend sending me reiki! On a side note, when you’re connected to reiki energy, even the intention of sending it benefits that person or animal immediately!This too shall pass. Much love to all. Thank you for letting me vent! 

Posted in Uncategorized | Leave a comment

Authenticity-me

I was asked what my perfect day would be like. I answered “like floating.” Feeling like I was gliding and floating and free. When asked to elaborate, I found it challenging to describe exactly what my day would entail. I couldn’t find the words to describe the feeling. I’d never known it. So, I tried to describe the floating feeling. Lightheaded? No. Sleepy? No. Not a care in the world? Wow, do I even know how I’d feel on a perfect day? Do I even know what a perfect day in my life is? Or would be? I just knew I’d be doing something to help other beings. I had a few ideas and I now have a few more. I’m meeting like minded people and loving my growth as a human! 

I was told I’d know what I’m supposed to be doing because it’ll make me so happy that I’d cry. 

Well, I had that kind of day! I’ve had a few of them actually and I’m hoping for tons more. I was free to be me! The authentic me. 

Most of the time it’s when offering reiki or sound healing to animals (and their people). I feel that so deeply in my core, that I wonder why I ever stopped working with them in the first place. Silly me, I tried to be “normal” and fit in. Hasn’t really made me happy. 

Here’s an example: I went to a rescue and offered reiki to the animals. As I went around to each one, I would feel or know who needed what or how much they would accept. They would show me or I’d pick up on something.  It was humbling and exciting.  I stood there all by myself and sobbed. 

I remember going to bed last week after I had offered reiki in an animal shelter and then gone to a circle/reiki share and met some new reiki friends. I was smiling and alive and told my husband I wanted “everyday to be like today!” And it will be, at least every Tuesday, for now. 
   

For more adventures like this: http://www.tailsofloveblog.wordpress.com

  Namaste!  

Posted in Uncategorized | 1 Comment

Mr.Bones 

http://www.tailsofloveblog.wordpress.com

Posted in Uncategorized | Leave a comment

A blessing in disguise. Night two

I’m sitting on the squeaky bed looking at the catalog for this place to see what my next class will be (why are there always two things I want to go to in one weekend? I chose). 

I was about to dry my hair. All of a sudden I hear a door close and then, “oh shit!” One of my dorm mates locked herself out of her room. I jumped up, ran out and it was the woman I sat next to at orientation! I called guest services and then four of us were having a great chat. Then three, two and here I am again. But I’m feeling a little better. It’s cold. It’s pouring and chilly tonight. I have my fuzzy socks on, I am so happy that I packed them. 
I had a great, no, amazing class today. I’m a little sad that it’s ending tomorrow. The work won’t end though.  

Posted in Uncategorized | Leave a comment

One of the toughest nights

One of the toughest nights I’ve had in a long time. Here I am. A grown woman. Almost 42 and I’m afraid to turn off the light. It’s been 20 years since I’ve slept alone in a dorm room. Here I am. I know no one. I hear footsteps out in the hall but I don’t know them. I’ve tried texting with my husband and my friend. But I’m just feeling more anxious. I put my headphones on to try to listen to a guided meditation and I find my heart racing and wishing my dog was laying on my legs like he always does. 

The bed squeaks. Loudly. My head is swimming with thoughts and I feel so low at this moment. I’m not really sure what or why I feel this way. I feel like I’m frozen in fear. I’m actually sitting up in bed, light is on and I’m so tired but I can’t sleep. Should I cry? Should I laugh? Am I hungry? What’s going on? 

I am alone. Alone with my thoughts. My reality. My fears. 

So let’s turn this into me facing this fear of being alone. I got this. I can do it. I just have to ignore the pains and the uneasy feelings. I have to be in class in 9 hours and I’m supposed to be well rested. I’m actually shivering, so, nope, not resting. 

Ok. I’ll listen to the angel meditation. Let me throw on a sweater. I’m so cold. Yup, now my teeth are chattering. 

It’s supposed to rain all day tomorrow and Sunday morning. 

Oh yeah, I’m at Omega! The institute for holistic studies. This place is awesome. Not much of a food selection for someone like me with many food allergies but everyone else is raving about the awesome food. I’m starving. Yes, there is a pain in the pit of my stomach. Not really sure what’s going on. So instead I’ll text someone. Wow. Go me. Lol. I’m so tense. Maybe I’m just really tired. These aren’t hills, they’re mountains to someone like me. I come from a pretty flat island so these hills are tough. 

An awesome friend sent me a you tube link with soothing sounds. It was very relaxing. Every time I’d drift off to sleep my body would jerk myself right back awake. 

Then the hot flash to chills started. Heartburn or chest pain? 

Posted in Uncategorized | Leave a comment

Another EndoSister gone

I didn’t know her personally, but I knew her. 

We all knew her. She struggled with this disease that makes other “normal” people think we’re crazy. They think we are wimps and can’t handle a painful period. Sometimes, I wish they knew!  

Until today, I always said I’d never wish this (Endo) on anyone.  I still don’t, but I did. 

I was in an angry place today when dealing with office staff at the gynecologist.  I actually thought she should get Endo. The kind that robs you of your honeymoon, children and normalcy.  The kind where, even if you don’t know when you ovulate, you do now, with the excruciating pain that only happens when a egg is released into your abdomen, because your tubes were eaten away by this disease.  The leg pain that comes the day before you get your “painful period” and lasts until the day or two after. The back pain, the migraine, the digestive issues, all of it. 

This young woman, Courtney, was only 30 years old and thought she’d be better off dead? It’s a crying shame that she thought there was no other way.  Sadly, she’s not the only one we’ve lost this year. Too many. 

Our community of EndoSisters is tough and strong and here for each other.  I may not be as active as I was in the fight, but I’m fighting with you guys every day. 

RIP COURTNEY 

Posted in devastated, Endometriosis, endometriosis awareness, excision surgery for endometriosis, hope and love, invisible illness | Tagged , , | 1 Comment